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The Journey~ The tales!

Awareness is the Key ~ A peek into my personal life...xoxox

by Jodi~Lynn on 03/08/16

Good Morning ~
Today is the day we celebrate the ground hog coming out of the shadows...but today is also the day we try to take Rheumatoid Arthritis out of the shadows too. I poke fun at myself a lot, write funny status’, call my self t-rex but you all don’t see the TRUTH behind this horrible journey that I have been on for 2 years. PLEASE KNOW - I am NOT writing this for sympathy -- But for the FACT alone.. It can happen to anyone; and it is FAR from just a little “arthritis” pain... Today - I think I will give you a peek into what this DISEASE is really like for us. Yup - I, myself, always thought of Rheumatoid like regular “arthritis” ~ never really understanding the impact and the consequences that one has to go through. One day back in March 2014 - I literally went to bed “Normal”..and never woke up to “Normal” again. At my age, It was hard to comprehend that the woman whose son called her “man mom”, doing everything from picking up a stuck atv,( yes, picking up), able to do anything he needed me to do ~ was crying in the bathroom because I couldn’t dress myself, brush my teeth, do my hair. My son has helped me get dressed, take my shoes off, open my meds etc Childproof is now our enemy! LOL - NO mom wants her son to see her like that.My mom - having her own issues, having to come help me because I was stuck in the tub or blowdry my hair..I couldn’t lift my arms up ( hence T-Rex nickname) without screaming in pain and having them “lock”. my wardrobe went from my fancy high heels to blinged out canes and a brace for every part of my body you could imagine. I still love my heels, but they don’t love me..LOL --- My legs were basically the same ~ Swollen, bakers cysts, excruciating pain - and Everyday - a NEW pain, a NEW issue would present itself. Waking up in the morning and NOT being able to get myself out of bed- arms, shoulders, frozen to my side. What used to take me 10 minutes, now takes me about 2 hours. Often this disease is misdiagnosed as fibromyalgia, Lyme, Lupus, etc....as with me - I was misdiagnosed with co-infections from Lyme for over a year. My daily routine consisted of 800 mg of antibiotics a day which in actuality, did nothing but allow to let this disease seep deeper and deeper into my body. I was in so much debilitating pain for so long - I was trying to accept that as my NEW normal...who the hell can do that? When we were blessed enough to find a great RA doctor, after a 3 month waiting period - he put me on prednisone. No other doctor had ever done that. All the emergency room visits, or trips to the hospital because the pain once in my leg literally made be pass out, they NEVER looked at RA..just gave me a painkiller to get by. I took the prednisone and within 2 days..I felt “normal”..I was like a maniac. I cleaned, I was able to reach up high, I had energy - It was near Christmas when we first moved into our home and i felt so blessed..a Christmas miracle in my eyes..YET - going to bed every night ( which was awesome because i hadn’t slept an entire night in months) and knowing this feeling of me being me again - well, it was temporary. It was and IS like living in a nightmare..I was scared and am so afraid because you never know if that is the last minute you are “normal”. I am a tough girl, independant...I went/go to work everyday regardless of how bad I hurt. I am stubborn to boot so asking for help back then..or even now, is a problem. The doc went through the process of bringing all the swelling down in my body and we were able to control the disease again with a medication. I knew then, again, only temporary. Your body begins to get immune after a year or so. There’s a trade off though - I take this medication so I can function, yet the medication in addition to the disease - is taking away my eye sight, thinning and whitening my hair, ruining my kidneys and it known to have cancer causing side effects. It is actually the less invasive medication out there for this disease. You are literally taking low dose chemo drugs - everyday! So even though i am up and going, and slowly going - I am happy to be...yet in the back of your brain, you are still dealing with the fact that you will get sicker...if NOT from the disease...from the medication you need to function. All RA patients are different. It presents itself different. Some people can make diet changes and that helps, some don’t need the tough meds, some are on infusions, some - have died. There is no guide book. No rules. The biggest memory I have about when I felt the LOWEST during this journey was I was hurting and “frozen” so bad, i was in the recliner. Todd & Dev had found a beautiful house right by the water and Todd always said the water was good for my soul. He made that happen!! Here is this awesome guy, who within 3 months of meeting a girl, found himself having to help dress this girl - poor guy. Who would want to stick around for that? Yup - that stays in your brain too!! Anyway - The slider curtains were drawn closed so I couldn’t see the water, but i was stuck in the fetal position, arms froze, staring towards closed curtains. I couldn’t even roll myself around..He comes home from work and see’s me “staring” at a blank wall...(sad thing was, I had been there for hours. My mind was racing..and disgusted with myself) ~ without a word, picks me up and moves me so I can see the water - he let the sunshine in..It was like a million dollars for me at the time - yet at the time - it was the worst feeling knowing I needed someone to HELP me. I don’t like asking for help - from anyone - never did. This disease if anything, has made me realize, that we are all NOT the super hero’s we want to think we are. Being positive about life - feeling blessed regardless but it is a fight - Everyday... It’s a fight from yourself, a fight with yourself, a fight with the pain, a fight...fight,fight, fight...and it is exhausting. ( mentally and physically) and to think....... I thought it was just SIMPLE ARTHRITIS........Simple arthritis. Things that make you shake your head or you would cry, you have to add humor to it...I got in a battle with a deli bag! I could NOT pull apart the plastic zipper thing. It took me over a half hour to get the microwave dish back into the microwave last week because my arms couldn’t go up that high. Devin and Todd used to bust my balls by holding my coffee cup up high on me..we laugh - what can ya do?? Laughter - It’s about the only thing I know I can still pull off. What I let people see and how I present- well. it is like living a double life. I belong to some support groups and I have met some “lifetime” new friends who suffer as well. It is amazing when you see the strength and it gives you strength....most people couldn’t survive a day but we have NO choice. We all look great...our makeup, hair, going to work, being moms and significant others, chores, responsibilities - we can not NOT do it...but be aware....we cry ----- constantly-- you just never see it. The disease is also classified as an autoimmune disease because certain immune cells malfunction and attack a person's own body. Meaning our good cells are attacking our bad cells..but they get confused...like kicking our own asses. We deal with fatigue, brain fog, fevers, insomnia, depression, dry eyes, dry mouth, loss of range of motion, balance, dental issues, joint deformity, flares, remissions. pulmonary fibrosis, pleural effusion (excessive amount of fluid in the lungs), nerve problems, gastrointestinal complications, skin complications, and kidney disease and shorter life spans. That's just a sampling from a more extensive list of possible systemic effects which can occur with arthritis and related rheumatic diseases. In fact, extra-articular manifestations can develop even when there is little active joint involvement. “There are over 100 types of arthritis. Systemic involvement is more likely with inflammatory types of arthritis. For example, chronic systemic inflammation can be indirectly linked to causes of death in rheumatoid arthritis due to serious infections, cardiovascular disease, lymphoma, and accelerated atherosclerosis. Systemic disease is serious. Bringing inflammation under control is essential. “ Osteoarthritis is not considered a systemic disease because it affects only the joints and not other organ systems. So - as we tgo about our day today - Please give attention to the groundhog...but please - Give ATTENTION and AWARENESS for this horrible disease..There is no cure.....but there is HOPE in slowing down the progression in some of us...?

" So, What is like being you? " they asked...

by Jodi~Lynn on 08/04/13

" well...what its like being you? " I replied with a little giggle. They gave me a loving smile and I continued to explain to them that I am no different than others. The only difference is the fact that I can "tune" in and get flashes,sounds,emotions and words from people who are not physically in front of me. I get it from those who have already left the physical world as we know it. Besides this "ability", I am like everyone else. I have bad days, emotional days etc... People kind of always seem to think that because of the fact that i walk with one foot in the heavens and one foot here, that I am somewhat angelic...I will be the first person to tell you..."ummm..nope!"  I love the fact that I can give people closure,comfort and validation in the time of need, but at the same time, I am unable to speak to my own deceased love ones, nor am I able to see health issues/concerns etc..this protection is for my own good. I was be constantly trying to analyse/heal/avoid my own life experiences and loss like everyone else. I am a firm believer that we are all here to learn something, no matter how painful the experience we have to go through - and this is true for myself as well.  Another question I get all the time is " How can you sleep at night??Don't they drive you crazy?". For me, when I am working, I said my prayers and I ask for protection and I give my thanks and then.. I turn "ON"...when my day is complete, I do the same routine, and then I turn "OFF.". Sometimes, I get a few stubborn energies that just want to stick around and I have to give them an extra push, but most of the time, Spirit is very kind to me and will do as I ask usually. Sometimes they get quite pushy with me and this ONLY happens when it is almost something that cannot be ignored. I do not make it a habit to just walk up to strangers and say " Hi, I'm a medium and so so wants to talk to you.." only because of 2 reasons..one - i am still not really comfortable with the term psychic medium for myself and 2 ) i want to be sure the people are ready to hear what may come out. I don't know if they want to talk to the person coming through. Some Mediums are really comfortable with this and I commend them. Personally, I'm not. Last but not least, the last question I have been hearing is " Are you a witch and is that way you do this? " I wouldn't classify myself as a witch. I don't belong to any certain religion as I see it. I feel close to the earth, wind, water and fire but at the same token, I will go to my little church on Sundays. It all depends on how I am feeling at the moment. I believe faith is within all of us and whatever way you want to connect to it, is all your own. I see myself as a sole practioner who is connected to many things..all at once. The gift I have was given to me, to be used with truth, love and honesty to the best of my ability...Glad to have answered some of the questions you have asked....xoxox?


The color purple...

by Jodi~Lynn on 02/17/13

In a cyber reading for a friend of mine who has been through so much and is facing more - she ok'd me to allow this testimony to be used..

ME: "Did you get a tottoo for him - he ( meaning her brother who had passed) is showing me your shoulder....Alexis ( her granddaughter who has passed) says - " she loves the purple..purple is happy. She will be there to take uncles hand. ( she is now losing another brother) He will recognize her - she is showing me a care bear - the one with the heart on the chest..?? Dad says - You are strong, always knew this, though he didnt show emotions well. Proud of you - You will pull the family together.."

HER: ""jodi,, you are not going to belive me ,, but richard drew me a purple butterfly for my tatto for my shoulder and step gave me a bear with hearts all over it,, it was alexis bear and NEVAEHAS FAVORT COLOR IS PURPLE"..

This one brought me to tears because I have known this family for a long time - and even though i wasnt real close to them for many years - this sister - out of the blue - called to me..thank god she did ; I am sooo happy to be able to give her some comfort..in any way! She is as much my angel as she feels I am hers..Love You "D" xoxoxo

thank you xoxo

by Jodi~Lynn on 02/17/13

"Jodi, Amazing is all I can say!!! I didn't know what to expect today, but I left knowing what I need to do for "Me"!! You made me laugh, cry, and spoke of someone very special to me. Knowing she is ok gives me peace of mind. Your reading was 99.9% right on the money. The personality of people in my life, names of family members and even described how they looked.. Who can do that... But most of all "Me".... time to do for "Me"... Jodi you have given me re-newed faith for my life. I have completed one assignment "took that deep breath and pushed it away". Next assignment to follow. I can't wait to sit with you again, you truly are an amazing person!!! Thank You " ~L.

Our furry friends ~

by Jodi~Lynn on 02/17/13

Sat with a client last night and it was the greatest thing...In time of need when she was a child, her dog was her best friend..her strength...she would confide in her pup and the pup would somehow help her through...last night - in her older years..her dog came through clear as day and basically told her to continue talking to him..after all these years..he's still there and he will still continue to give her the strength..the same feeling of comfort she had when she was a child...Our "babies" are amazing...and they stick around as well...! xoxox?

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